Thu, 15 November 2018
Dysautonomia is the most important nervous system problem you have probably never heard about. It is a vast grouping of diseases that affects the body's most basic functions that occurs below the level of direct conscious control--temperature control, digestion, and regulation of blood pressure are some of the critical functions of this unheralded system. When things go wrong with the system, it is obvious to patients. The problem is the cultural awareness and conventional medical system has been slow to recognize and effectively treat this dysautonomia.
Enter: Kelly Freeman. A survivor turned patient advocate, Kelly is the founder of The Dysautonomia Project dedicated to educating patients and clinical providers alike to close this big gap. Having survived dysautonomia herself, she has founded The Dysautonomia Project to provide patient advocacy and education. She is the co-author of a book of the same name and her website can be found at thedysautonomiaproject.org.